Quote:
Originally Posted by JoannaP79
Thankyou en bloc, really helpful as always, I appreciate it. :-)
The steroids tablets were 50mg I think. I took them for a week and the neuropathy was the same, but appreciate that it probably wouldn't miraculously disappear as nerve damage is nerve damage. I have an appointment this Friday at the gps to ask for a next stage pain med, I am going to ask for a corticosteroid shot to see what it does. If it helps all my other stuff that would be great. I have alot of pain in my face behind my eye and I now recall my neuro saying the last mri shiwed inflammation within the whole left side of ny face and sinus. I know I have inflammation everywhere from my other non neuropathy symptoms.
Sorry to go on about Ivig but do you know if its a non inflammatory mechanism behind the neuropathy whether ivig will then be of any use? My biopsy just showed outright reduction of nerves rather than inflammation.
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Oh yes, even when PN/SFN is non-inflammatory, the IVIG can be helpful. Probably used more often in this scenario rather than for inflammatory based neuropathy (because they typically use long term steroids for this type, due to lower cost).
If you can get approval of an IVIG trial, then make sure to request (after the trial) to have a repeat biopsy. If the nerve density improves, it will help greatly to get continued treatment.