Quote:
Originally Posted by Marie33
Hi Hopeful
My Rheumo told me you could develope neuropathy with Fibro. Seems for some pple they go together. She told me I do not have Fibro, I dont have any of the symptoms for it. My neuro wanted me to be evaluated by a Rheumo doc anyway . 
Also, I was looking at some of your posts dated back to 11/2012. You and a few other posters talked about having IVIG treatments. I was dxed with small fiber neuropathy in Oct 2012. I was wondern if you ended up getting the ivig treatments and if they worked for you?. Does one have to have an indentifiable autoimmune disorder such as CIDP, etc.. can people with small fiber neuropathy (idiopathic) with no known cause or any unknown autoimmune disease be a candidate for these treatments., do you know? Thanks.... |
Hi, Yes I did get the IVIG and continue getting them. Yes, I did get help from them. I was getting them once a month. Now my Rheumo and Neuro talked and Neuro wanted to increase them to 3 days in a row each month. I started that this week and had some substantial side effects but I'm hopeful that I will end up with less pain. With just one Rx, I had relief but only for about 1 week. They are hoping with 3 the Rx will last longer. My neurologist tried to get me IVIG for neuropathy. My insurance said no. Then my rhemo gave it a shot for Sjogrens. I have a possible diganoses of Sjogrens which I don't agree with but it got me the IVIG. My Rheumo had to fight them them. He put in the time and I got it. Hopefully, you have a good doctor that is willing to keep going back to the insurance company.
Good Luck and if you have any more questions let me know.
hopeful
