Originally Posted by cait24

Your meds seems a bit low to me. Mestinon dose vary a lot. But it seems most MGers take 60mg, 3 or 4 times a day and many take the time released at night. It seems most MGers also start on a 40 or 60 mg of pregnisone and then wean off or down to the lowest effective level.

I take 60 mg of mestinon 3 or 4 times a day and 180 at night. I stated on 40 mg of pregnisone and within 3 days, had more stamina and relief from MG symptoms. I was sleeping 16 hrs before pregnisone and then was sleeping only 10. I felt like a new person. It made me say to myself, I can handle this disease if I can keep feeling like this. When they weaned me down and I reached 25mg, all the MG symptoms broke through. So they upped it back to 30 until the next neuro visit and we figure out where to go from here.

If I were you I would do more research on the thymectomy. Most MGer do not show a thymoma or nodule, but when they operate they find hyperplasia (abnormal high activity) and symptoms abate after surgery. i have read many MGers stories were their CT of the thymus was normal but after surgery they found hyperplasia and a few even a thymoma. I would discuss it with your doctor.

http://emedicine.medscape.com/article/1171206-overview
http://www.ncbi.nlm.nih.gov/pmc/arti...00197-0089.pdf
http://www.ncbi.nlm.nih.gov/pubmed/8888243

kathie