Encountered an unusually large number of stories on ALS from around the world today; I haven't done a news blast in a while I thought now might be a good time; a few are about science but most profile a case from somewhere around the world, usually associated with a patient specific fundraiser, some address social issues in context ALS.

The MDA might be seen as a patron saint of ALS fundraisersMuscular Dystrophy Association Launches Nation's Largest St. Patrick's Day Fundraising Campaign Celebrating 75 Years of Progress
Muscular Dystrophy Association Launches Nation's Largest St. Patrick’s Day Fundraising Campaign Celebrating 75 Years of Progress | Muscular Dystrophy Association

ALS Survival May Be Cut Short by Living in Disadvantaged Communities
Just a moment...

Three stories from the Science 'sector:'

Re: on the Blood-brain barrier . . . haven't seen an ALS story mentioning the BBB in a very long time!
Breakthrough technology enables mRNA delivery across the blood-brain barrier
Breakthrough technology enables mRNA delivery across the blood-brain barrier

Re: on the HEALEY ALS Platform
Expert reaction to four papers trialling treatments for ALS within the HEALEY ALS Platform Trial
expert reaction to four papers trialling treatments for ALS within the HEALEY ALS Platform Trial | Science Media Centre

Two Investigational Treatments for ALS Show Glimmer of Hope
Access Denied


We talk to a mom and teacher diagnosed with ALS at age 38
https://www.fox13now.com/the-place/w...-als-at-age-38
Ski fundraising event on Mt. Hood on March 8, 2025 . . . first time I have seen skiing used for fundraising . . . Utah

JD Vance reacts after his cousin, 12, denied heart transplant over vaccination status; 'It is a distant relative, but . . .'
https://www.msn.com/en-in/health/hea...ut/ar-AA1zBZbQ
Help from on high . . . !
Re: is AI positive or negative for Amyotrophic Lateral Sclerosis patients. . . ?

Two stories from the AI 'Jungle'AI-designed chips are so weird that 'humans cannot really understand them' -- but they perform better than anything we've created
https://www.livescience.com/technolo...ms-much-better
Woman banned from assistive AI app after teaching it to say "****"
https://boingboing.net/2025/02/19/wo...-say-****.html

Re: UK

'I'm paralysed, but I've written a show about my colourful life'
https://www.thejc.com/life/im-paraly...-life-ditria2n
This story shows how social infrastructure may, or may not be very helpful
Re: Malaysia
Philanthropist Donates RM100,000 To MND Malaysia Society
https://codeblue.galencentre.org/202...aysia-society/


Re: in Africa
First insights into familial ALS in Egypt reveal genetic variations and disease progression
https://www.news-medical.net/news/20...ogression.aspx
Egyptian Arabs with Amyotrophic Lateral Sclerosis
Re: from the Down Under region
'One foot in front of the other': Living life with a terminal disease
https://www.thepress.co.nz/nz-news/3...rminal-disease
About 400 people are living with MND in New Zealand at any given time, and about two people die from the disease every week.

One More Round for Roy
https://www.youngwitness.com.au/news...-round-for-roy
Interesting funds raising approach . . . Australia