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| ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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09-11-2006, 06:38 AM
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Jeannie age 28
Limb Onset June 2000 Dxed July 2001 UK My blog http://jeannie-world.blogspot.com/ My website http://uk.geocities.com/jeannie_25als@btinternet.com/ ALS/MND CHATROOM http://client1.sigmachat.com/sc.pl?id=144320 |
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09-11-2006, 01:42 PM
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DannyD
Leander, TX 47 y/o Bulbar onset, slow progression, still walking & driving: Mainly Upper Motor Neuron; Spasticity and No Balance Symptoms 3/97; Dx 12/00; Cane 1/03; BiPAP 9/03 AFO 4/05; Walker 5/05; "Strength does not come from physical capacity. It comes from indomitable will." Gandhi |
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09-12-2006, 05:43 PM
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Dave, Los Angeles CA
Limb onset (hands), Symptoms 2003, dx. 2/2006 Hands continue to weaken; some atrophy in arms and shoulders. Still walking, talking, eating and breathing. Living each day best I can. |
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09-14-2006, 04:07 AM
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Junior Member
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My name and more
Fotios Tzimas 46 years Hellas Greece dx march 2004 bulbar fast progress now is everywhere wheelchair 2005 since 22 april 2006 i write with head mouse smart nav and Skeleton Key keyboard more about me www.als-net.gr Geia hara Fotios 
Last edited by fotios; 09-14-2006 at 04:10 AM. |
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09-19-2006, 11:22 AM
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Wally is 39 years old
living in Northeastern New York dx'd 9/02 limb onset Wally is also non-verbal autistic and has epilepsy In wheelchair and on Bi-Pap and oxygen concentrator taking Namenda and Lithium Carbonate to block glutamate and on several vitamins and minerals Also using Enemeez (Docusate sodium) everyday for severe constipation. |
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10-04-2006, 09:16 PM
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Junior Member
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Quote:
Did you have the treatment in China back in 08/04? Sheila Kimbrell Daughter of Foye Thornton |
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10-05-2006, 03:04 PM
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Colin
dxd may 2006 bulbar onset may 2003 speech almost gone plus hands and right arm also legs very weak still getting about have quality of life....yahoo... 
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10-05-2006, 09:53 PM
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MarkNH
New Hampshire First Sx November 2002 Diagnosed March 2003 Severe leg muscle atrophy. Manual w/c and crutches. Fasc's overall including tongue. Still working, driving, living differently but fully! |
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10-07-2006, 09:57 AM
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Member
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Hello I'm Lisag wife of Gary..
Diagnosed 1999 with bulbar onset ALS Ventilator dependent since 2004 but can come off for showers etc.. |
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10-07-2006, 11:07 AM
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#20 | ||
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New Member
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first symptoms-- May 2001
lots of tests three different neurologists blah blah blah -- yada yada yada wheelchair -- January 2004 bi pap-- March 2005 today -- great family and friends, things could be worse, on the whole my life -- o-- meter is still registering on the plus side. |
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