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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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09-28-2018, 11:25 AM | #1 | ||
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Junior Member
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I was dx with Multiple Myeloma in 2013. I took chemo and then had a SCT in 2015. I am cancer free.
In Jan. of 2018 I developed to diplopia. It took months to find a neurologist who would order and do the gold standard test. SNF-EMG. I started and failed with Mestinon. I had breakthrough diplopia. I started on Cellcept and have finally jumped through the hoops to be getting IVIG. Here is the background story. I am an infusion nurse. CNRI® I have give about 100,000 Grams of IVIG over 13yrs. I am so looking forward to getting this miracle drug as I've seen it change lives. I've suffered since my SCT and have asked for IVIG from my Oncologist; but they do not use it. I wonder if my low IG levels had been looked at seriously and I had just been given a loading dose back then and brought my levels up, I would not have come down with this. At this point, I am just massively thankful I am getting the drug I've known I needed! |
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"Thanks for this!" says: | ger715 (09-29-2018) |
10-02-2018, 04:36 PM | #2 | ||
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Magnate
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Please keep in touch. Anxious to learn how you are coming along. Gerry |
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10-07-2018, 03:03 PM | #3 | ||
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My vision has not improved; but seems to be worse. Not so much abdominal pain; but loose stool. I feel weak like after my Stem Cell TP. Anyway, I guess I should look at the long picture. Thanks Gerry! |
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10-08-2018, 12:54 AM | #4 | ||
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Magnate
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Becausing I take meds that lessen my Potassium, I am taking a prescription for Potassium meds daily.. Are you taking any extra Potassium? Hopefully you will be seeing some positive effects soon. Gerry |
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10-08-2018, 05:02 PM | #5 | ||
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Junior Member
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I started Calcium & Potassium among others. Thanks for the input!!!
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"Thanks for this!" says: | ger715 (10-08-2018) |
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