Hi all, can't believe it's been over ten years since I have been here lol. I am reaching out because I am desperate. I recently, stupidly quit taking Latuda cold turkey at the very end of July without telling my psych. I was tired of living in a numb, depressed, apathetic, dark cloud. I know better, titrating down did not even cross my mind. Anyway, about 6-8 weeks later I begin noticing a lot of movement of my tongue pressing and rubbing on my teeth. Eventually reaching a point where my tongue is being rubbed almost raw, burns in some areas, and is sore in others. If I concentrate I can keep it still but I find it is worse when I am doing something. Does not happen during sleep which my psych told me was normal. I am to see a neuro on the 17th to see what can be done. I am sure they will write me a prescription for yet something else. Information I am finding is saying that for this type it clears up 90% of the time. What I am interested in is if anyone has had this? Did it go away? How long did it take? Did you have to take medications? Please, anyone.

I use to take Latuda now I get a haloperidol injection once a month. I also got Botox for pain on my jaw and head. I was severely beaten up and was in a coma I have been on antipsychotics for 15 years. I was given another injection once by my doctor and I was cured of everything all the pain and all of the pills I had stopped taking them. I just never received that specific injection again I don’t know why.