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12-03-2016, 09:08 PM
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Newly Joined
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Hi everyone.
This is my first experiences with support groups. Earlier this year I received a confirmed diagnosis of atypical NBIA. A couple of months ago I was notified that my DNA revealed I do not have NBIA. It is a neuro degenerative disease but they are not sure which one. Having been in the hospital and undergone extensive testing I have decided to step off the merry go round at least for now - no more testing. I am wondering if anyone else is in a similar circumstance with diagnosed neuro degeneration. |
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12-04-2016, 04:03 PM
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Hello Lonepine: Welcome to NeuroTalk!
 I hope you find the time you spend here to be of benefit.  I'm sorry I cannot comment with regard to your condition.  You might want to consider re-posting this in one of the other forums here on NT. I'm not sure which one would be the most applicable.  You can look through the list of forums & see what you think. One option might be the General Health Conditions and Rare Disorders forum:http://www.neurotalk.org/forum2/ Perhaps other members, here on NT, may have other suggestions.  
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