Hello, I’m Alexis! I’ve been diagnosed with a syrinx from C4-T9 after a 15 ft fall onto my head while rock climbing. I’m here looking for support as nobody I’ve talked to (including my family physician) seems to have any idea what Syringomyelia is or how to help me in the slightest. I have persistent left sided numbness and tingling, severe upper back pain and it’s beginning to feel as if the worst thing to do is move or get out of bed because it causes more pain. I’ve been referred to neurosurgeon with no avail.

Does anybody have any tips or tricks to ease pain from a syrinx without Chiari or even a neurosurgeon who specialize in Syringomyelia recommendation in Canada?

I feel blessed to have been able to find a support system like NeuroTalk after doing loads of research in trying to find support. Thank you for having me here 😊

Hi Alexis

Welcome to NeuroTalk .

I am sorry to read about your syringomyelia; it is something that I have no personal experience of.

You can use the Search command (https://www.neurotalk.org/search.php) to find threads here where it has been discussed.

All the best.

Welcome!

I also just recently joined neurotalk, though I'm not at all familiar with Syringomyelia. I'm sure you're bound to run into someone on here who's familiar with it.

Hi newToSFN

Welcome to NeuroTalk; I hope that you will find the community as knowledgeable and supportive as I have .

One thing which may help you is the Search command (https://www.neurotalk.org/search.php). You can use it to find topics here which may be of assistance to you.

All the best.

I also have syringomyelia

Did your fall cause the syrinx? Are you still
Looking for a specialist?

I received my diagnosis about two weeks ago. Trying to find people who have had a syrinx drained so I know what to expect.

Welcome Alexis_M1098.

Kitt