A thought- I read that some medications for treating high blood pressure can be the cause of peripheral neuropathy. Has anyone had any experience on this?

Hi suzy,
Don't forget there's the Peripheral Neuropathy Forum . Just click on the underlined area and it will take you there. You might find more responses to specific questions like this one over there as more people with PN will be checking that forum rather than this New Member area.

There's also the sub-forum on PN PN Tips, Resources, Supplements & Other Treatments Sub-Forum

Search feature for all the forums is https://www.neurotalk.org/search.php
If you have a specific medication you're looking into, you could run that through the advanced option and click on the PN forum in the list of Options there. Need any help with any of that just post and someone will be sure to help.

btw, I'm sorry to read that your symptoms are still getting worse. I hope you get some answers when you do get in to see your Specialist. I developed neuropathy after taking 2 oral medications for melanoma treatment [called Targeted Therapy]. They were ceased after only about 10 days (7 to 10 days, forget exactly now) but anyway my neuropathy got really bad in both legs in that week or so but then worse for some months but then began to subside and for the past 3 months or so it's only really bad in my feet - toes to ankles both legs, and that hasn't changed. I call it a plateau. On different type of treatment now and just beginning to get it in my fingertips so I'm ramping up my B12.

Please be sure to check on all the B12 information in the PN area. Methycobalamin. Used not be able to get it in Au. I've been buying it in from overseas for years. Now I think some of the pharmacies are carrying it.

Have a good day.

I agree with Lara here, but assumed you would have read all the threads she describes. There's not many of us, perhaps we should pool our resources in 1 thread. I think the best active thread is the LeedsLad84 thread. He has extensive experience, has recorded his symptoms and has seen Neurologists. He would be a good person to take questions.

Take care. Let us know how you get on with your appointment.

Had my 2nd appointment with Neurologist and he did another EMG and the measurements were the same after 2months. Talked about what I described as it progressing to the point where I can feel it all over. He didn’t seem bothered about this and said sometimes the brain tricks the body. I have to get some more blood tests and chest X-ray to eliminate other factors which he didn’t elaborate. I go back in 6 weeks.

As I read what I have written it sounds like he was not that good but I feel more comfortable now about things. He did talk about sensory neuropathy and I am a bit confused about the difference. Anyone have any ideas?

That sounds encouraging suzyt.

I hope that things work out well for you.

Hey suzyt,

Glad to see you got to see your neurologist. I copy and pasted this from the link below. The link is fairly comprehensive.

Type of Nerves

1. Motor
2. Sensory
3.Autonomic

Motor nerves control the movement of all muscles under conscious control, such as those used for walking, grasping things, or talking.

Sensory nerves transmit information such as the feeling of a light touch, temperature, or the pain from a cut.

Autonomic nerves control organs to regulate activities that people do not control consciously, such as breathing, digesting food, and heart and gland functions.

Peripheral Neuropathy Fact Sheet | National Institute of Neurological Disorders and Stroke

Best wishes

Attty

Thank you for the information. Things are a bit more clearer. I now wait for my next appointment in 6 weeks to see outcome of blood tests and X-ray.

Anyone with PN and has had Covid vaccination and has had adverse reaction please. I am due for Astra Zeneca one soon.

Thanks in advance

Hey Suzyt

I had the Pfizer vaccine in January and apart from a sore shoulder for a day had no side effects.

After having many blood tests all showing normal my Neurologist has got me to get an MRI of brain and spine. This is to rule out MS. I’m having this done in a couple of weeks and visit to Neurologist May 20. He is confident that I have not got MS but also says that important to rule it out as part of my ongoing dealing with my sensory neuropathy it’s crucial to stop looking for cause if none has been identified. The brain works in mysterious ways and if I focus too much on my condition it seems to exacerbate the neuropathy. I have noticed that when I am otherwise occupied I do not seems to notice it. The only aspect of it is that when I do heavy exercise my legs feel very heavy. So for the time being I am going to focus on the other parts of my life and meditation. If after my MRI I find out it is not MS I will get on with my life. If it is MS then I’ll deal with that then.
Appreciate any thoughts. In case you have not read my earlier stuff, I have neuropathy in my feet which has not progressed in 6 months. But I have sensory neuropathy which started 6 months ago and progressed to most of my body.