[ScottSuff]

I seen the info posted below and thought I’d see what the Smart White Rats thought about it. Is there really something to this? Maybe it doesn’t apply to all that suffer with PD, but if it could help just a single soul, that would be great.
Also, is there some link here between vascular compression and venous insufficiency? Maybe Dr Zamboni’s procedure could help PWP.
http://www.nationalmssociety.org/new...FQOdnAodTH9RJw


http://www.ncbi.nlm.nih.gov/pubmed/10064369

J Cardiovasc Surg (Torino). 1996 Dec;37(6 Suppl 1):155-66.

Neck and brain transitory vascular compression causing neurological complications. Results of surgical treatment on 1,300 patients.
Fernandez Noda EI, Nuñez-Arguelles J, Perez Fernandez J, Castillo J, Perez Izquierdo M, Rivera Luna H.

Hato Rey Community Hospital, Puerto Rico 00918, USA.

In this brief article we describe the role of compression of the vertebral subclavian arteries, internal mammary, internal carotid arteries, brachial plexus and coiling and kinking of the vertebral and basilar arteries, the faulty irrigation of blood supply and oxygen of the cerebellum and basal ganglia of the brain. Among the effects are: a decrease in the secretion of dopamine at the level of the putamen, which produces the symptoms of Parkinson's disease, and chorea due to chronic transitory faulty blood supply and oxygen to the caudate nucleus, ballism by hypoxia at the level of subthalamic nuclei and athetosis in the lenticular nucleus. This compression is caused by the anterior scalene muscles and the cervical ribs at the level of the vertebrae C6-C7; by the sternocleidomastoid at the level of the cervical atlas; and coiling and kinking of the vertebral, basilar and the internal carotid arteries. The decreased blood supply to the cerebellum and basal ganglia is the cause of the Cerebellar Thoracic Outlet Syndrome (CTOS) and its neurological complications, among which are ipsilateral paralysis, Parkinson disease and others. We are presently engaged in several studies to widen our understanding of this phenomenon.

PMID: 10064369 [PubMed - indexed for MEDLINE]

Later updated and renamed: Cerebral Thoracic Neurovascular Syndrome (CTNVS).http://www.ncbi.nlm.nih.gov/pubmed/11887092



http://free-news.org/jacamp03.htm
Translated below

Discovery DSALUD. Number 21. October 2000.
Solution for some degenerative central nervous system.

Parkinson's and multiple sclerosis can be cured ... surgery.
It has been nearly 20 years that there is a surgical technique fruit of research by Dr. Fernandez-Noda, internationally renowned surgeon who solves many degenerative central nervous system, including Parkinson's, multiple sclerosis, epilepsy or cerebellar ataxia. Technique which, despite being endorsed by more than 1,600 patients operated on, is hardly known by the medical establishment. Why?.

Einstein used to say: "Give me a man of imagination rather than an intelligent man'. And the reason seems obvious: only the intuitive person is able to focus with no apparent problems from new and unexpected solution perspective and find that the facts alleged were not tackled properly. However, in today's world where the scientific field is linked to the economic interests of multinationals and other pressure groups, labor, and the findings of a lone researcher is considered an anachronism out of context that is not valued.

Similarly, in the field of medicine there is an evident stagnation, with a civic institution is hardly conducive to openness and acceptance of those new ideas, experiences and research that do not conform strictly to its guidelines. With just the absence of "valid arguments" and "scientific reasons"-ie, that do not coincide with official truths conjuncturally set-to, systematically, refuses usefulness and validity of new approaches, discoveries, diagnostic systems, therapies alternative and unconventional forms of healing.

Well, the history of C.TO.S. and its discoverer Dr. Fernandez Noda- Is a perfect example. And what do the initials C.TO.S.?. They correspond to the English expression Cerebellar Thoracic Outlet Syndrome (Syndrome Cerebral Operculum of Thoracic) and refers to pathological compression of the neurovascular structures that sometimes occur at the base of the neck. I will try to explain to the reader the simplest way possible: on both sides of the neck are two regions called Scalene Triangle that are bounded by the scalenus anterior, scalenus medius and the rib (see picture). And in between are the subclavian artery, the brachial plexus and the vertebral arteries and internal mammary. Well, sometimes there is a neurovascular compression of these structures causing a malfunction of the nervous structures.


Dr. Fernandez Noda.

So much that most doctors know. But what these doctors do not seem to know-and what he discovered was Fernandez Noda-compression is that this also affects the vertebral artery causing a child reaches the brain's blood flow and impeding venous return in the brain area, resulting many of the degenerative processes of the central nervous system, Parkinson's, multiple sclerosis, cerebellar ataxia, epilepsy and some cases of Alzheimer's, among others.

A unique discovery that led to this physician to rename the syndrome. And is that while medical jargon this is known problem with multiple denominations, scalene syndrome, Carpal Tunnel Syndrome Thoracic and Thoracic Angostura-but, above all, as Thoracic Operculum Syndrome or TOS, Fernandez Noda understood that what CTOS would be correct to call adding the "C" of the brain to the description of the syndrome.

But let's split and knowing the background story to the hand of his closest collaborator, the Spanish surgeon José Pérez Fernández unique in Europe, along with his disciple, Dr. Jose Luis Castillo Recarte, This technique practiced today who kindly offered to explain.


Dr. Jose Perez Fernandez.

--We wonder, first, who Dr. Fernandez Noda ...

"Then a cardiopulmonary surgeon based in Puerto Rico American and Cuban origin in the early 80s was one day speaking of TOS a patient who also suffered from Parkinson's and noted after the operation, while they had resolved TO.S. symptoms had improved the symptoms of this other disease.



--That is, trying to solve the problem of compression in this area enconfró that was resolved at least part of another disease: Parkinson.

--Accurate. Dr. Fernandez Noda realized that both-the TOS and Parkinson-related seemed, had a common link. And, haunted by the possible relationship, began to investigate cases of patients affected by Parkinson's and other central nervous system diseases like multiple sclerosis, epilepsy or Alzheimer's cases. What was the outcome?. Well, he found that most patients who suffered these problems had the compression syndrome of the base of the neck, which is known as Thoracic Operculum Syndrome or T.O.S. It was then, as just explained, decided to enter the letter "C" predating TOS to make clear that the problem affected the blood supply to the brain.

--And once he realized that an understanding of that part of the body could be the cause of these diseases, what did?.

-Continue to investigate and discover that the cause was primarily in compression that occurred in the vertebral artery caused a decrease in both intermittent blood flow. And he understood that that was what originated the underlying cerebral ischemia as a handicap in the central nervous system pathology. This means that the narrowing of the vertebral artery caused that blood from reaching the brain smoothly and therefore ultimately also less oxygen. Obviously, his later work was to design a surgical technique that would solve the problem by returning to its proper level vertebral artery blood flow.

-Different, I suppose, which is practiced when operating conventions TOS

"Sure, because in conventional surgeries ripping works well above the middle scalene and the first rib, or by cutting and removing it directly. With technology designed by Fernandez Noda instead only acts on the vertebral artery. An operation less complex and more effective.



"I suppose so important to a finding would open the door and the studies would continue under the auspices of a university or hospital ...

"Quite the contrary. The answer was a systematic frontage, absolute incomprehension and the pervasive negative to verify their claims and evidence. Only this man, far from being discouraged, he undertook a solo show of his claims until he found solid scientific findings. It had to design their research framed within the strictest medical orthodoxy and each case was studied and documented through the prism of two-fold: to demonstrate the involvement of the vertebral artery in the genesis of degenerative disease of the central nervous system and test the consequences of decreased blood flow has on the function of neural structures of the brain.

This done routinely arteriographic studies of supra-aortic trunks, Doppler vascular studies, including transcranial Doppler, and uptake studies of radioactive isotopes (SPECT PetScan), most of these costs himself.



--What happened next?.

'Well, as from the scientific point of view, investigations were exquisitely correct in its approach had an overwhelming response in several prestigious medical journals. Recognition would give scientific backing to their findings and work because, as you know, these publications go through the sieve of a committee of experts.

Now, inexplicably, the medical profession continued to show indifference to their research. And the couple that grew as the number of patients operated on with success and scientific presentations at international forums ... also growing indifference of the rest of the medical establishment.


Doctors Recarte Perez Castillo Fernandez and performing a Doppler.


Dr. Castillo Recarte performing an ultrasound on the neck.

"But why having scientific and clinical evidence other doctors do not immediately assumed the treatment?.

--Probably because it was so unexpected discovery that broke so many schemes and established that it was difficult to accept. But above all, because it also exists between the medical profession's inertia indulge established paradigms. In any case, I must say that what really concerns me today is that such knowledge is lost for lack of doctors who continue treatment on the day that the few who vanishes. And it is law of life. So I think it is more useful to disseminate these findings to engage in fruitless discussions and costly battles that only serve to inflame positions. Fernandez Noda and those who have followed in his footsteps have proven beyond reasonable doubt the veracity of our assertions. And our duty, therefore, is to continue the spread of technology. Something that I do today through the platform that your magazine offers. Gesture and honorably and we appreciate very much.

"In that case, many patients who suffer from the ailments that we have mentioned could have been cured if it were not for the lack of information from their doctors ...

"Certainly, because the main reason that many undiagnosed cases of CTOS is the lack of doctors. And the worst part is that the clinical diagnosis of CTOS is simple and to the surgical technique developed by Noda Fernandez can be solved in many cases of the disease totally. I have patients who came to me with severe problems of movement because the attending physicians did not know what to do-some in wheelchairs, "and today make normal life.

"So patients with these problems for years, could still be cured?.

"We must consider each case. The lack of blood supply to the brain for years may have caused problems impossible to cure. In such cases, the operation which could do is stop the advance of the problem. But in cases of recent onset of symptoms healing often becomes total. Sure it would be best to act as the first signs of the problem and act immediately to avoid exacerbating the condition.

"Certainly, I have seen among medical journal articles and has left me in the talk of the art appeared in a recent The Journal of Thoracic Surgery where you set out the overall results of 1,300 cases. So many people have been operated now?.

"Well, the number of cases treated today exceeds 1,600. In any case, I must say that despite the success there are still aspects to be studied. Because we know that the damage is caused by a shortage of irrigation of the nervous system, which conceptualize medically as arterial ischemia. However, in these cases ischemia is a functional nature, not continuous. And we think that the autoimmune phenomena that occur in some of these processes, particularly in multiple sclerosis-are secondary in nature and not the cause, as currently speculated. We also believe that the final damage and injuries are caused by the massive generation of free radicals that are formed due to circulatory deficit. But to clarify these questions need further investigation.

- And where such investigations are headed today?.

"Basically, to decipher the role of free radicals in these processes, something for which we are designing the research protocol and appropriate.

José Antonio Campoy.

--------------------------------------------------------------------------------
Only two surgeons in this surgical technique practiced Europe.

Dr. Jose Perez Fernandez (left) and Jose Luis Castillo Recarte (right).

Inexplicably, only two surgeons performed the surgical technique in Europe created by Dr. Fernandez Noda. These doctors José Pérez Fernández and Jose Luis Castillo Recarte, who have worked closely with him 14 years.

The first, now retired from his position as chief surgeon at a hospital in the Madrid, Spain was formed first, then finished the race, went on to further his studies in Britain working for 10 years in several university hospitals in the Country Wales. In British medical certification adds his degree in pharmacology from the University of Dublin.

For his part, Dr. Jose Luis Castillo Recarte is pupil of Dr. Perez Fernandez, whom he met in the first stage of a professor at the CEU, where he was teaching. Been working together and cooperating closely for over 23 years.

The two are coauthors of several scientific works published in recognized medical journals in Europe, USA, South America and Japan. Currently developing their work in Medical Specialty Clinic located at number 5 of the Madrid Churruca street. As probably many readers who are interested to contact them provide your number: 91-5328932.



--------------------------------------------------------------------------------
List of illustrative cases.
To enable the reader to assess the effectiveness of surgical technique created by Dr. Fernandez Noda ask Dr. Jose Perez Fernandez briefly inform us of the outcome of some cases treated by him in Spain. Here is a brief sample that is illustrative of that we only give the initials to respect the privacy rights of patients.

M. C.: Female. 50. English. Intervened in November 1990. Diagnosis: C.T.O.S. (multiple sclerosis), 4 years of negative development with loss of vision in left eye (80%). Memory loss. Loss of strength and fine movements of right upper limb. Dizziness and unsteadiness.

Results: functional recovery practice 100%.

M. J. B.: Female. 22. Spanish. Intervened in May 1997. Diagnosis: C.T.O.S. (multiple sclerosis). MRI: Numerous injuries. Evolution of 6 years with numerous outbreaks. Diplopia. Hemiparesis (I). Last Review: May 2000.

Results: full remission.

F. L. G.: Male. 33. Spanish. Intervened on 13 January 1997. Diagnosis: C.T.O.S. Migraines numbness of the upper limbs. Instability. Pain in neck and back. Muscle spasms in legs and others.

Results: Full recovery.

F. D. G.: Female. 27. Spanish. Intervened in November 1 994. Diagnosis: C.T.O.S. Headaches, neck and back. Dysmenorrhea. Instability. Scotomas. Memory deficits. Tinnitus.

Results: Full recovery.

F. M. S.: Male. 35. Physician. Intervened in July 1998. Diagnosis: C.T.O.S. (multiple sclerosis).

Results: 80% of improvement. More positive developments.

F. R. R.: Male. 23. Intervened in July 1999. Diagnosis C.T.O.S. (multiple sclerosis). First outbreak ten years previously bilateral hemiparesis, right greater than left. Facial paralysis. Frequent outbreaks.

Results: recovery of 90%. Continues to evolve positively.

V. P. S.: Male. 80. ATS. Intervened in October 1995. Diagnosis: Parkinson's disease.

Results: improvement of 90%. Virtually asymptomatic despite his age.

L. L. V.: Female. 12. Intervened in June 1990. Diagnosis: Korea. 3 years of evolution.

Results: youngest patient operated with a recovery of the painting immediately. Today is 22 years old and 1.75 m. high. His sisters and father are short. It was observed that in the patients operated before completing their skeletal maturity the growth rate increases substantially.



--------------------------------------------------------------------------------
Considerations for practitioners.
The magazine has found it useful to make a short summary for doctors and other professionals in the field of health who may be interested in the scientific and systematic methods used in the CTOS and neurovascular complications.

Meaning C.T.O.S.: (Cerebellar Thoracic Outlet Syndrome): Functional compression syndrome of the neurovascular structures as they pass through the scalene triangle compression with involvement also of the vertebral arteries and internal mammary.

Etiology.

Congenital.
Cervical ribs.
Compressive fibrous bands.
Bands muscle compression.
"Kinking" and "Coiling" of the vertebral arteries.
Acquired.
Cervical trauma.
Muscle hypertrophy.
Elongation of the brachial plexus.
Severe stress.
Mechanisms of production.
Ischemia by arterial compression.
Massive generation of free radicals by the hypoperfusion-reperfusion phenomenon.
Autoimmune phenomena.
Metabolic disorders due to insufficient irrigation at the level of brain capillaries and formation of angiotensin II peptides.
(We suspect that partial recovery cases are the result of myocardial arterioles and capillaries to produce irreversible damage).
Research and diagnosis.

History and physical examination.
Cervical and thoracic radiography in two projections.
Vascular Doppler (in recent years added the intracranial vascular Doppler). It uses the sitting position and performing the various maneuvers of thoracic operculum stenosis.
E.M.G.
Potentials.
Scan.y PET SPECT.
Supra-aortic trunks arteriography with digital subtraction technique (IVDSA).
(Not considered playing a useful animal model as the surgical approach was the only solution for the compression syndrome. Continued this line with a systematic comparison of pre and post surgical the objective parameters obtained. It was not merely a symptom but an assessment Evidence).
Systematization of the syndrome and its complications.

It is essential to consider separately the pure syndrome and complications arising.

Symptoms resulting from C.T.O.S.: Migraine headaches, neck pain, anterior chest and back, upper limb paresthesia, sighing dyspnea transient memory deficits, dizziness, tinnitus, impaired urination, altered level of consciousness, trismus, amaurosis fugax, tachycardia, dysmenorrhea and sleep apnea.

(This symptom does not have complete or collectively appear and their appearance may be intermittent due to the varying intensity of the triggers).

Complications C.T.O.S.

Described by other authors:
Aneurysm of the subclavian and vertebral arteries.
Thrombosis.
Described by Dr. Fernandez Noda:
Ipsilateral paralysis.
Loss of vision temporarily or permanently.
Full compression of the subclavian artetias with necrotic phenomena and the threat of distal upper limb gangrene.
Symptomatic Parkinson's disease (SPD).
Some cases of early Alzheimer's disease (EAD).
Epilepsy.
MS.
Cerebellar ataxia.
(It should be noted the desirability of early diagnosis to avoid the more or less reversible alterations of nerve estructutas. The optimal approach would be the surgical treatment before the onset of degenerative central nervous system).
On the vascularization of the brain by means of arteriography and radioisotope studies:

The putamen is supplied by middle cerebral artery (branch of the carotid) and posterior cerebral arteries (terminal branches of the basilar artery). The posterior cerebral arteries supplying different areas of the forebrain and anastomose with the anterior and middle cerebral arteries forming the circle of Willis.
When irrigation is affecting the putamen and oxygenation compression of the vertebral arteries and / or carotid produces tremor of Parkinson's disease symptoms (SPD).
When it affects the caudate nucleus occurs Korea.
When it affects the thalamus or hypothalamus occurs tribalism.

--------------------------------------------------------------------------------




http://www.upcspine.com/news_vol2_0304.htm#top
This link is another newsletter’s take on CTOS and chiropractic treatment. He makes some good points that I think is worth thinking about.

I did a forum search and didn’t come up with much (doesn’t mean it’s not there) so I thought I’d post instead of just lurking to see if anyone has any thoughts on this.

What do you think reverett123?

[ScottSuff]

I should have included the translation to start with, but it's in there now.

[reverett123]

First, let me apologize for not saying hello earlier, neighbor. I'm about 15 miles south of you between Maryville and Friendsville. I've been working on my blog and not following here as I normally would.

Another thing I wonder about with thorasic outlet problem is how it might affect the cerebrospinal fluid which flows through brain and spinal cord. Ifits flow is restricted the pressure builds up and a condition known as "Normal Pressure Hyrocephalus" results. It is often mistaken for PD. In fact, the way that I became aware of it was a story from a couple of years ago where an MD had himself been diagnosed with PD ten years or more ago and had finally figured it out. If it flows through the same area as is being talked about, it could be important since it is readily correctable surgically.

So, Scott, what do you do when you aren't a PWP? PM me if you would rather.

[SammyJo]

I am very interested in CTOS, because it is implicated in MS too. Dr. Fernandez-Noda's wife had MS, which started his research, same as Dr. Zamboni and his wife's MS. Zamboni is the one who recently brought CCSVI to world attention as cause of MS, stenosis in the jugulars, just a few inches above the CTOS area.

My friend Destiny here in the US, her father has Parkinson's. She has already spoken to Dr. Recarte, who has continued the CTOS work of Dr. Fernandez-Noda.

You can follow this PD discussion, and what Destiny finds out at the Yahoo group: healingparkinsons

Destiny wrote:
I spoke with Dr. Jose Luis Castillo Recarte this morning, and he is a very generous, kind person. He is on vacation with his family until January 11th. I asked him about the article below and he said yes they have been doing this surgery since the mid 1980's with great success for different forms of neuro problems. The doctor is going to email me within a few days the testing information to determine if this is treatable by this surgery.

[Matthew Van Slyke]

SammyJo/Destiny wrote about her father going to Madrid for possible surgery by Dr. Recarte for CTOS. Did this happen? Globally, is this work that was pioneered by Dr. Fernandez-Noda starting in the mid-1980's, migrating anywhere else??

[ScottSuff]

Originally Posted by Matthew Van Slyke

SammyJo/Destiny wrote about her father going to Madrid for possible surgery by Dr. Recarte for CTOS. Did this happen? Globally, is this work that was pioneered by Dr. Fernandez-Noda starting in the mid-1980's, migrating anywhere else??

From Yahoo website

Update Bentley Lyon 4/4/10
Sun Apr 4, 2010 1:11 pm (PDT)


4/4/10

Dear Friends,

First, I want to wish all of you a beautiful Easter and Spring!

If you have emailed a question to me and I have not responded, please re-email me and I will make sure to get back to you. I was traveling for work off and on and may have missed some messages.

Thursday, we met with Bentley's neurologist who has promised to help us get the CT venogram. This is very important because his CT angiogram showed that he has a mass pushing against his jugular. He also said he has a friend who is a neurologist in Medford who would probably be willing to speak with Dr. Castillo in Madrid. We are hoping that Bentley can have the procedure for CTOS in locally if possible. He may also need some help with his jugular area, but we do not know yet.

If we are successful in getting a local surgeon to help us, this could be helpful to everyone. You could either come to Medford or follow our steps with your own doctors. We first went to our GP who sent us to a local vascular surgeon who does TOS surgeries. Then, the surgeon ordered the testing for CTOS, Doppler ultrasound, which Dr. Castillo in Spain read and told us Bentley has some CTOS. We have been waiting for our Vascular surgeon to order the CT venogram for 4 weeks. Now, hopefully the neurologist will order it and we will find out what the mass is and how to deal with it.

My suggestion would be to ask your GP or Neuro for help to find a vascular surgeon who can order either MRI's or CT's Angios and Venograms. These are two separate procedures. This way you can have a full picture of your vascular condition. You will also want to have the Doppler study done. I will email what the goal is so your doctor can understand why you are requesting it. They are not aware of why you would want to do this test but they will quickly grasp the concept. If they are willing to speak or email Dr. Castillo in Spain this would be even better. Another option would be to go to Madrid for testing with Dr. Castillo.

One of our friends has had success using the NUCCA method of chiropractory and will give us the details maybe this week.

Here is my theory in brief. There are many ways to aid in symptom relief using different tools to increase oxygen and blood flow in and out of the brain. (Cycling, dancing, singing, running, walking, smoking, LDN, HBOT, Magnetic Resonance, STS, BPM, NUCCA) I think the reason some of these work better than others and some not at all for different people with PD is because it depends on the severity of the compression problem. This is not the only factor, but I believe it is the major factor.

Bentley continues to do well as long as he has some physical activity every day. He still uses LDN, HBOT, BPM, blended greens and some multi vitamins. Interesting to note when he does not use HBOT his dermatitis returns. Using HBOT regularly it is completely gone.

Our plan continues to be resolve the compression problem the safest way possible and then use HBOT to continue to heal his stroke affected side and any leftover affect from PD. We do still keep an open mind about stem cells to help him heal, but cannot recommend any place as of yet. We believe if we heal the compression problem all of these other tools will be more effective and their effects will endure.

Wishing everyone a wonderful day,

Destiny

[Fiona]

My official White Rat opinion is that this whole concept has major legs and should be seriously pursued. I have had some kind of obstruction or cyst on the base of my neck on the back right side since diagnosis. I also have a vertebrae that seems to stick sraight out in the middle of thoracic spine. Hmmm..
*pushes up sleeves of lab coat, and starts to think about this...."

[reverett123]

Let's help it to its feet and see if it can stand. (That assumes that it doesn't overdose, metaphorically speaking... ) Here are some dots that might connect-
1- There is the work in North Carolina with electrostim of the spinal column. Shows that it is reasonable to at least look at the spine;
2- Compression at different points along the spine could account for the individuality of symptoms;
3- There is some sort of connection between the shoulder girdle and PD. Frozen shoulder is common, for example. If it were a decline of supply of neurotransmitters, wouldn't it seem that a gradient of symptoms would exist with the most affected areas being also the most distant? But is this what we see? Are things seen more readily explained by, for example, the idea of compression in the area of the shoulders? And what of lower limb problems? Is there a compression problem there ?
-Rick
4-

Originally Posted by Fiona

My official White Rat opinion is that this whole concept has major legs and should be seriously pursued. I have had some kind of obstruction or cyst on the base of my neck on the back right side since diagnosis. I also have a vertebrae that seems to stick sraight out in the middle of thoracic spine. Hmmm..
*pushes up sleeves of lab coat, and starts to think about this...."

[seeksacure]

I too am very interested in CTOS. My wife has PD and I think CTOS may be part of the problem. I am very glad to see this discussion here.

A relative who has multiple sclerosis was treated for CCSVI (chronic cerebrospinal venous insufficiency) by having his jugular vein, which was too narrow, widened out by angioplasty, and showed immediate and dramatic improvement. Hundreds of others have also shown improvements after CCSVI treatment. There is a huge movement to get more CCSVI treatment centers in the U.S. and Canada.

The initial CCSVI studies showed that people with Parkinson’s do not have CCSVI. However, this does not mean that there is no vascular aspect of PD. These studies, done by Dr Zamboni, had to do with veins, not arteries. It may be that abnormal blood flow in arteries, not veins, is involved in PD. Or, it may be that a combination of venous and arterial problems, or some venous irregularity that Zamboni did not look at, is involved in PD. Dr Noda says CTOS is involved in both MS and PD.

There is a very active forum for MS patients at the chronic cerebrospinal venous insufficiency forum *edit* On the thread “Dr Sclafani answers some questions,” Nunzio, a poster, has asked Dr Sclafani for his opinion on CTOS and MS. One of Nunzio’s posts to Dr Sclafani details how CTOS is diagnosed. (Since this is my first post here, I was unable to post the links *edit* Maybe someone else will post the links.) I hope that the *edit* discussion will help start some interest in the medical community to start looking into the vascular aspect of Parkinson’s.

There are doctors in Spain, Chile and Japan doing CTOS surgery according to one of the posts.

Considering all the success of CCSVI treatment for MS, it baffles me why there is so little interest in the PD community into looking into this.

I know that Dr Noda was widely attacked for his views. But considering the resistance that Dr Zamboni has met, I don’t give too much credence to Noda’s naysayers. In any event, in light of the CCSVI discoveries, the vascular aspect of PD is crying out for examination.

[girija]

Rick,
Do you have a detailed layman's version of this in your blog or somewhere else? just checking before I write....
thanks
girija

Originally Posted by reverett123

Let's help it to its feet and see if it can stand. (That assumes that it doesn't overdose, metaphorically speaking... ) Here are some dots that might connect-
1- There is the work in North Carolina with electrostim of the spinal column. Shows that it is reasonable to at least look at the spine;
2- Compression at different points along the spine could account for the individuality of symptoms;
3- There is some sort of connection between the shoulder girdle and PD. Frozen shoulder is common, for example. If it were a decline of supply of neurotransmitters, wouldn't it seem that a gradient of symptoms would exist with the most affected areas being also the most distant? But is this what we see? Are things seen more readily explained by, for example, the idea of compression in the area of the shoulders? And what of lower limb problems? Is there a compression problem there ?
-Rick
4-