Hi everyone 45 yr old female and experiencing a bunch of scary symptoms. Back of head headache since August, and severe burning neck and trap pain and shoulder pain that radiates down back of arms and midback. This all started with some adrenaline type head rushes, palpitations and waves of dizziness over Thanksgiving during a virus. Those have disappeared. But now I have terrible joint and face pain, ear aches that precipitate headaches and neck pain that comes on in waves but is daily and consistent. I have terrible terrible insomnia as well. There may be some autonomic issues at play as well. i dont have orthostatic hypotension, rather, I have very very low blood pressure that actually rises when I stand up and my heart rate goes up. May be something called POTS syndrome. Going for autonomic testing soon.

Anyway, my question is for PD is the neck pain that sudden and daily for a month straight as a presenting symptom? Its not a stiffness per se. I can turn my head in all different directions and that does not illicit the pain. It just comes on in a nerve burning fashion out of the blue. I do have many C6-C7 severe stenosis issues but have felt that generally as a pinched nerve, not like this. I feel like all the fascia around my neck and shoulders are on fire.

I do have some some weird "tugging" pains in my soles and palms on my right side, and my right arm seems to want to hold onto someting if that makes sense, (I think thats nerves bc this ordeal is wearing me out) but no tremor or other PD symptoms. Balance still good. No slowness or weakness. My neuro is stumped. 3 MRI's MRA's, blood tests, lumbar puncture. I was just looking for an explanation of the neck presentation in PD. Neuro does not think PD. I also got myself nervous bc of my autonomic issues by looking up MSA and wondering if the combo of autonomic issues and possible PD issues = MSA. I do have LYmes so this could just be the old bug rearing its head during a stressful time...... Thanks!

Don't even think about MSA at this point,itis fairly rare and you have not excluded other things. It is true to say that many of us do have neck pain, especially with a kind of burning sensation as an early symptom, but we are all different and come with a variety of start points on this journey. Do not assume that this is your journey. Instead go to a good MDS and get their opinion. IF you still think PD is likely - through confirmation by the MDS - then think about postponing medication and using exercise to maintain wellness. I am not advocating you go that route, just that you research it well before medication so you are as informed as you can be.

Good luck
Lindy :-)

Thanks for responding Lindy. I also have all over muscular twitching - all over body not just one side and burning all over (no real tingling or numbing, just a burning feeling). So no organized neuropathy or constellation of symptoms. Does Parkinsons also have all over muscle jumping like that - and again - so sudden (onset in course of 6 weeks?) Also- what is an MDS????m

Thanks!

Pyr

To me you do not describe typical Parkinson's symptoms but have you checked out your symptoms against those used for diagnosing PD. If you are still concerned it may be Parkinsons then as lindy says see a good Movement Disorder Specialist (MDS).

Do you have a repetitive, desk, or computer job?
Those can aggravate c spine issues..

Have you have intensive/long term antibiotics for the Lyme disease?
And follow up testing to check on it?
Symptoms from Lyme can be all over the place, and chronic, you might use the search link in my signature line to find posts & threads on Lyme here.


My dad's PD more or less slowly creeped up on him, he has ddd /stenosis spinal issues too. His PD started with the shaking hand and foot drag mostly.

Totally agree with dilmar, doesn't seem to fit into the early PD pattern. But, PD has many unusual outliers so check it out with a MDS if you're concerned. However, I would definitely check out other alternatives, which seem more likely.

Would also say do get your B12 checked out. I have also read that over supplementation with B6 can give problems. There really are many things that could cause your symptoms. PD diagnosis is largely one of exclusion, that is excluding all likely/testable conditions until PD stands out as the most likely. That is unless a person presents with classical symptomatology. Yours do not seem to be that.

I have those same symptoms you are talking about.The muscle twitches,the headaches,heart rate problems ect...My doctor diagnosed me with Willis-Ekbom disease (WED.Or RLS.the one sign that got me the diagnose was the weird sensation in my legs that kept my legs constantly moveing.That symptom was hiding behind all the rest of the symptoms so you might overlook it.Pay close attention to any weird feelings in the legs,cause your symptoms sound like mine.It causes a lot of anxiety which causes muscle stiffness and jerking.It's also considered a sleep disorder as well.I'm currently on Parkinson medicine that also treats rls.PD and rls have similar symptoms they even have the same treatments.Are you shaky as well?Hands are clammy.Your breathing feels like you just ran a race?This is a very serious disease and needs immediate treatment if this is what you have.I'm not saying that you do,but when you describe it you sound just like me.RLS will never go away,but they can control symptoms.The amount of anxiety it can give you is dangerous.Good Luck I hope this helps.