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#11 | ||
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Junior Member
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Yes, I have am EMG and nerve conduction study. They were normal. I have not had a skin biopsy. I am trying to get that accomplished. I have been reading how burning in your back in not normal for neuropathy. It scares the crap out of me!!!!! I want to see my kids grow up and be mobile!
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#12 | |||
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Wisest Elder Ever
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I have been wondering if you have tried Lidoderm patches?
Applied to your back, where you know you have that problem, might be helpful for you. I found for myself when I had terrible thigh pain..called Meralgia paresthetica, from my abdominal surgery, nothing helped it. Then Lidoderms were approved here in US and I got my doctor to give me an RX for them. Two weeks of very day use (12 hrs on 12 hrs off) and these patches actually put me into a remission! I guess the nerve was just firing because it couldn't turn itself off. (cutaneous lateral femoral nerve) I found that applying them at the high point of the thigh where the nerve exists the abdomen was the best spot. I think Lidoderms work best where the "source" of the pain is and not where it is "felt".. which is typically a referral location and not the direct target. So I think you should try this. They are expensive if insurance won't cover them, but really they were amazingly helpful for me.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | drwk (09-21-2011) |
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#13 | ||
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Member
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Just to add my two cents, my small fiber non-length dependent neuropathy was Dx'd by skin punch biopsies.
The Sjogren's was confirmed somewhat after that. I eventually had a follow-up appointment with the neurologist who'd done the biopsies that identified SFN. Prior to my visit, I'd found on-line the paper she'd published about small fiber non-length dependent and its link to Sjogren's. Imagine my surprise when, after reviewing my case, she said that my neuropathy was "idiopathic." I just sat there and looked at her, and have not gone back for any more neurology appointments. |
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