Does anyone have knowledge of what helps with dizziness associated
with neuropathy?

If the dizziness has been confirmed as resulting from the neuropathy,then it would be in relation to autonomic neuropathy. This causes BP to drop upon standing and heart rate to increase (in compensation to the lower BP) or the heart rate to take off on it's own and climb quite high (SVT-superventricular tachycardia). The heart rate can also drop too low in some cases (which can cause dizziness).

Your dizziness would most likely be from the drops in BP. There are a couple medications to help increase your BP (Florinef and Midodrine), but there are also simple life-style changes you can do to help your symptoms. Drinking extra water/fluids increases volume in your vessels and therefore increases BP. When you get dizzy, simply sit down!! Your BP will start to adjust once you are seated. Now of course, you can't stay seated all the time, so drink some fluid while sitting and that may help some when you get back up. The hardest part is standing STILL...this allows the Blood to follow gravity and head straight to the ankle and pool there. Moving around will help to contract the muscles in your legs to push that blood back up into the system, where it needs to be. If you find the blood pooling often, then compression stockings may be helpful also. They are tight fitting stockings to help compress the vessels in the legs to get the blood back up into the system and increase the BP.

It's ALL about getting your BP to stay within a normal range even when you are standing. If your BP drops more then 20 points systolic when you stand, then you likely have some autonomic neuropathy. If after trying the various things mentioned above, and you still have problems, then you should consider Midodrine 3 times a day and then if still not resolved, consider adding Florinef. These medications needs to be prescribed under the guidance of a cardiologist. It can take a couple months to find the right combination/dose that works best for you, but they are fairly effective in relieving you of the dizziness .

Hope this was helpful.

I wanted to add the following

There is three types of dizziness:
- Lightheadedness, which is perfectly described by en bloc
- Vertigo, rotational dizziness (such as spinning around your axis)
- Imbalance (not really dizziness, just hard to maintain upright)

When you talk about dizziness, you should try to use one of the three types above to specify your symptoms.

Lightheadedness is often caused by bloodpressure issues.
Vertigo can be caused by malfunction in the vestibular or vestibular nerve. There are many causes of vertigo.
Imbalance is mostly the result of lesions in the vestibular system, often preceded by vertigo.

Yes, vertigo - the room spinning and you swear you will thrown off the bed if you are lying down. Some people vomit from it. Being dizzy is far different for sure.

I had a period of time where I got dizzy when getting up from a lying position. This was different than having my usual lousy balance. If I stayed still and didn't try to move quickly I would be okay in a minute or so. Seems this lasted for about a week or so. Maybe it will pass. I hope so. In the meantime be careful. Ken in Texas.

I have dizziness but it is not due to autonomic symptoms. When my full body symptoms broke out, I had hot, wet and warm sensations in my left ear canal. Along with that, I started to experience disequilibrium. Sometimes I feel like everything is rocking or that the floor isn't stable. When my symptoms really flare up it feels like I'm walking on a trampoline. However, I haven't met anyone on this message board who has experienced this type of dizziness with a similar symptom onset.

Could it be medication related?
Where are your main PN symptoms located?
Lower body/upper body, hand , foot etc?
Something separate from PN?
Sore neck muscles or trigger points?

ive started getting this the room spins dont know its the meds been on tramdol and amitriptyline for a year never had this before vision sometimes is effected too nerve pain