[Coerley]

Welcome Sue, I am Sue too. Just wanted to let you know you are not alone. I have sharp pain also, without a rash, but I do have swelling. I hope you can find as much comfort in this group of great people as I did and still have. I am not on that much but when I am, just reading what everyone writes makes me realize that I am not crazy and am not alone. I have been a pain specialist years ago and heard him tell the intern that I was a hypochondriac. This was before the bone scan proved I had RSD. It was very heartwarming to hear a pain management doctor say that. Anyway, welcome and I know you will feel better (not without pain) but with a lot of support from this group.

[nopainever]

Hi Hun,

I am just getting your post right now. Sorry for the delay! I get the bumps too. Not as much on my face as I do my neck and shoulders and chest. It's a crappy disease for sure! Hope you are feeling a little better. Take Care, H

Originally Posted by loretta jewell

Hi Heather, Thanks for the picture. I'm sorry you have this on your face. Do you have sensitive lumps under your skin. I do, in the chin area, cheeks, forhead. I also have red dots and rashes full body. It's bad enough to hurt inside, but could use the outside redness and rashes to go away, right? Take care, your baby is beautiful. Mine is 29....
Oh, I see the red spots on your neck.

Loretta

[kahmasayshi3]

Hey all,

I developed a bad skin rash on my upper left arm about 2 months after the rsd spread there. It started as light red, turned big blotchy and bright red, it developed a big skin infection with little bubbles and icky liquid coming out. I know, it was gross! It finally subsided after I got an infection cream from the dermatologist. The discoloration is still there and it has turned into more Rsd discoloration, which tells me thats how it started. I also have Rsd in my lower left leg and I devleoped a patch of the same rash on my leg, but no where else. When I explained that to the dermatologist, she was so confused, she didnt know what it was from and she wouldnt accept that Rsd causes these kind of rashes. I wish drs would just admit that they dont know what the heck Rsd can do sometimes! lol
I took pics and if anyone wants to see, just email me. Also, the rash was very hot and red and my rsd pain increased when it was visible.

Hope this helps,
Shan

[Jomar]

Sometimes we are missing out on welcoming new members when they post here in the Photo & pictures thread.

If we can keep this thread for your RSD pictures & photos, and post any of the discussions in the forum, that would be great.

Reflex Sympathetic Dystrophy Forum (RSD and CRPS) {main threads & posts area}
http://neurotalk.psychcentral.com/forum21.html

[bobinjeffmo]

Hi,

These pictures were taken shortly before I had my left leg amputated above the left knee this past January. The right leg is also facing amputation due to decreased blood flows, chronic deep vein thrombosis and infections.

Pain levels are rather uncomfortable, but thanks to rather heavy loads of oral narcotics plus my morphine pump (I just had my 2nd one installed a month ago), I usually keep it at a level I can live with.

Anytime I'm just about to loose my mind in pain, I go out and find something I can do for someone I love or care for, because when I do I always get en endorphin hit that gets me through the rougher spots. Give it a try, and you'll see for yourself it really does work! Bob.

[Jennelle]

Originally Posted by DDayMBB

Have been DX with TOS and somewhere along the line CRPS, the cold make my hands burn so, that even during mid summer have to wear gloves in the frozen food section. The other day was out for a walk in the woods, when I got done with my walk, I removed gloves (they were not insulated,but fairly warm any way) and as usual my fingers were one fire, thoough I was left with bue/purple blanching almost like a bruise. Was wondering if anybody elses' fingers look like this, fro the cold???

I have had hypersensitivity issues also! I find it can come and go, I have a desensitization program and find that it helps some. It progresses from light touch to stronger touch. I use a hand massager at home and rub my hand as tolerated on different textures. I stared with just rubbing it on my jeans and a towel. It helps with some of the hypersensitivity and nerve pain. I haven't found anything to help with the deep nerve pain (that makes it feel like my bones hurt) if anyone has tips about that I would appreciate it. Also does anyone else have issues with limbs falling asleep at night? thanks!

[ali12]

Hi everyone,

Here's a few pictures of my RSD leg and arm. They aren't right good but you should be able to make them out OK hopefully!



Dystonia and RSD in left leg - this isn't a very good picture but you should be able to make out the rotation and the swelling. This was taken a few months ago and my leg is now much more rotated than in this picture - I will try and take some more pics later.



RSD flare and really bad swelling in right arm. This flare was caused by putting too much pressure through my crutches.



RSD bruising and a "bump" where the swelling was. The bruising got much worse after this pic was taken and my whole arm went red and blue

I hope these pictures help some and if anyone has any questions, please let me know! I will try and get some better pictures of my leg later.

[tjbird]

I have seen those feet before, on me! tjbird

[bobinjeffmo]

I hope these pictures won't scare anyone, but trust me, RSD can get really bad. This past January I finally had the left leg amputated above the knee and we're just hanging on tight till we loose the right leg. It's not if I'll loose that one, just when.

The RSD started in the left leg in 97. 4 years ago it crossed over to the right. Now talk about spreading fast. Between circulation, chronic infections and blood clots, it's always something yet I just grin and bear it with a bad joke or a laugh. Laughing is always better than crying.

Even though RSD is hard to live with, I only have to remind me of what it would be like living with his awful disease in another country such as India or Russia. Then what would life be like on a daily basis? I know my blessings, I hope everyone else remembers them too. Bob.

[lexiemae1]

Here are my pictures of my right foot rsd..