Originally Posted by MOOK

Thanks for all the information. We recently went to a Ortho Dr. at Legacy Emanuel Hospital. He confirmed there is no structural damage to her ankle/foot. We told him our Physical Therapist is the one that diagnosed her with CRPS. He said she doesn't show all the signs but it could be. He referred us to a Dr at The Children's Hospital at Legacy Emanuel in Portland, OR. It would be in the Pediatric Rehabilitation Services part of the hospital. The Dr.'s trained with the Rehab center in Philadelphia that specializes in intense rehab for people (I think mainly younger people) suffering with CRPS. We are scheduled to consult with them next week. I will keep everyone posted. She has been in PT 3x a week. She had back to back no pain days. However, she says her leg feels "tired". I'm not sure what that means. Hard for an 11 yr to explain. Wish us luck.

Originally Posted by CoralToe

Hey Mook,

I live in Seattle, WA and my pain doc here has just opened a sister clinic down in Portland. She splits her time between offices...but she has been a Godsend for me. She treats many patients with CRPS. I'm sure it is not quiet as goo as one of the BigWigs talked about so often here...but I have found her to be extrememly helpful. I'm not sure what the forum rules are here, and if I can post names/clinics...but if you want more info shoot me a PM.

-Heather