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02-27-2014, 12:16 PM | #71 | ||
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Magnate
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In spite of not being in a "good place"; you really accomplished quite a bit. Being down really doesn't help the energy level either. Bed must have seemed a place to retreat. I know it's easier said; but if possible, you need to cosider the source (your sister-in-law) and realize she is the one to be pitied. Keep on singing.......".sing out loud, sing your whole life long"............ Gerry |
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02-27-2014, 09:27 PM | #72 | ||
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Member
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when I am shattered ...I retreat to my garden....cuddle my pets...and also sew....things to me like that are meditative...my mind slows...I find my center...innately you nurtured yourself...good job!! Do hand make that gift for your sister....your creation will be so treasured...trust me on that... To help myself when I had evil thoughts about my family who abandoned me......soon as they entered my head I caught the thought and said my favorite prayer...then after about a week of plenty of praying ...I could say a short prayer and I love you...(because that did not change) and now it does not hurt near as bad. I feel compassion for them although I will never be with any of them without a therapist between us. I am so sorry you have been hurt on that level...it is deep pain just not needed to be piled on us..... go easy on yourself. HB |
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"Thanks for this!" says: | eva5667faliure (03-11-2014), Hana (03-02-2014), Mark56 (03-06-2014), PamelaJune (02-27-2014), Rrae (02-28-2014) |
02-27-2014, 09:59 PM | #73 | |||
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Senior Member
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Thank you all for your understanding, I know sadly that far to many of us have had to stand up for ourselves and our dignity. It hurts me that I can and will put this behind me! but, I feel for my poor husband, for it is his sisters not mine who are causing the upset and it has hurt him deeply that his one sister in particular could be so cruel, low and undignified.
She is a vicious woman with nothing better to do. I'm glad I don't have to see her any time soon. My husbands younger brother and his wife endured the same treatment from them a few years back. Now I know what I know and I should have known better than to let her in and spread her poison into our lives. I can pray for her and this I will do. |
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"Thanks for this!" says: | eva5667faliure (03-11-2014), ger715 (02-27-2014), Hana (03-02-2014), Hannabananna (02-28-2014), Mark56 (03-06-2014), Rrae (02-28-2014) |
02-27-2014, 11:19 PM | #74 | ||
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Magnate
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Pam,
When I mentioned your sister-in-law was to be pitied; I almost added and needs prayers. I was glad to see you are going to pray for her. You have shown yourself to be very compassionate. I think this will make your husband feel better knowing you are not allowing her to hurt you, but rather are aware she is in need of prayers. Gerry |
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"Thanks for this!" says: | eva5667faliure (03-11-2014), Hana (03-02-2014), Hannabananna (02-28-2014), Mark56 (03-06-2014), Rrae (02-28-2014) |
02-28-2014, 09:56 PM | #75 | |||
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Senior Member
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He is hurting in a way I have never seen before. We have faced years of illness and I have always tackled it head on. Actively participating in events to raise money for charity, doing bike rides, running, raffle tickets etc. His sisters comments were mean and she added in for extra effect his mother didn't like me. I can hold my head high and say I loved your mum, I know her last words were I worry for your sisters, she knew what I knew, poisonous souls fester and rot and nothing good comes from them. I guess it's why he won't talk of it. Yes, my prayers are for him now. I've said them for her. He is my rock, my life and my essence for being, I am grateful to have him in my life.
Last edited by PamelaJune; 03-01-2014 at 05:45 AM. Reason: Taking the higher road |
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"Thanks for this!" says: | eva5667faliure (03-20-2014), ger715 (02-28-2014), Hana (03-02-2014), Mark56 (03-06-2014), Rrae (03-05-2014) |
02-28-2014, 11:47 PM | #76 | ||
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Magnate
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Pam,
I am glad you were able to put all of this in writing to us on NT. It is out..out..out.. of your system. Don't even dwell on these hurtful, pitiful women any longer. Your husband is a "gem". Letting him know you realize he is nothing like them, and that you are proud to be his wife is most likely all he needs to hear from you. Keeping both you and your husband in prayers. Enjoy one another. Gerry |
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"Thanks for this!" says: | eva5667faliure (03-20-2014), Hana (03-04-2014), Mark56 (03-06-2014), PamelaJune (03-01-2014), Rrae (03-05-2014) |
03-03-2014, 01:52 AM | #77 | ||
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New Member
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Hi everyone, I had my NEVRO senza trial in August 2013, and it was brilliant. I've two leads, one covers c2 thru to t3, the other is in my lumbar. Post trial was initially terrible, however, after multiple reprogrammings, we hit gold...for a while. I managed to come off oramorph, and was reducing my cocodamol, then suddenly everything started to hurt. Every day, I would have pain free times, and then like turning a switch, my arm, spine and legs would start hurting. I can only equate it to an epidural wearing off during full blown labour. It really started to mess with my head, it would make me scream out loud and then I'd cry. I've never been the 'pain person', I was confident and self assured, merrily going for surgery after surgery (8 in total in the past 14 years).
Now, the pain is almost constant, and the device is causing pain. Everyone I know who has had the implant (I went on the INPUT course at Guys and St. Thomas' in London), and at this present time, we are all in such pain. Could it he the weather? It has been cold and wet for months now, and that is the only common denominator . Sorry if this doesn't make much sense, but I just need to find out whether anyone else has experienced this? We had a 9 month reunion, and all of us are more depressed than we were pre implant. I had my implant privately, but 3 months after the implant all insurance relating to my spine has been removed. Now I'm at the mercy of the NHS and I've got to wait until 9th April before I can be reprogrammed. |
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"Thanks for this!" says: | eva5667faliure (03-20-2014), ger715 (03-04-2014), Hana (03-04-2014), Mark56 (03-06-2014), Rrae (03-05-2014) |
03-03-2014, 09:15 PM | #78 | |||
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Senior Member
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I guess the only thing I can say is the SCS is only supposed to provide up to 60% pain relief! my rep and PM both said it won't take me off meds, and it won't fix what the actual pain problem is, it's only another method to try and tell the brain you are not hurting. Pain is sneaky I think, I think, IMO the pain beast has learned to move to somewhere else nearby to let my brain know it's not gone away, it's still there and that something is wrong, there is something there that still needs fixing but surgical intervention hasn't advanced enough to know what it is or how to do it. And that just sucks, I've still got private health but come August our income will be less and I'm not sure how long after that we will be able to afford the insurance premiums we currently pay to give us both top cover. So I can understand your concern with the NHS. When I was in London and before I got private health I was at the mercy of NHS and, looking back, tbh it was a real hospital merry go round so I can understand your concern. Do try not to let it bring you down, on here you will find many of us who face the same uphill battle as you, we have banded together from across the world. You will meet many from the USA who have different SCS units, but, similar stories. We are a pretty good bunch of people who totally empathise with you. If you groggle some of our stories you will see what I mean. I'm glad to meet another Nevro person and am interested to hear more of your experiences and stories. |
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"Thanks for this!" says: | Bouncybabs (03-13-2014), eva5667faliure (03-22-2014), ger715 (03-04-2014), Hana (03-04-2014), Hannabananna (03-05-2014), Mark56 (03-06-2014) |
03-04-2014, 06:23 PM | #79 | |||
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Grand Magnate
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amen amen amen amen
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03-04-2014, 07:02 PM | #80 | |||
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Grand Magnate
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your pain understood as you spoke of the dr. hitting your sweet spot let alone do it again and not kick him in the nuts i understand and pray for a miracle third orthosurgeon "i will not do any surgery as to many things are going on it wouldn't help" again my friend we are chosen and are special my love of our Father Brother and Mother Mary our Angels when i am strong spiritually everything else means not as important and the love of our children my granddaughter and someone i miss terribly just terribly my dog Oliver my eldest has him i hurt so badly missing him Gods creation blessed are we in that strange but understood love for one another here UNCONDITIONALLY oh the thaught of that worn flannel shirt drenched with the smell of Love be well as well as can be
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"Thanks for this!" says: | ger715 (03-04-2014), Hannabananna (03-05-2014), Mark56 (03-06-2014), PamelaJune (03-04-2014), Rrae (03-05-2014) |
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