I have recently gotten a doctor to take me seriously about pain and my diagnosis. It seems many doctors just are not familiar with TOS.

I have developed muscle spasms in my legs that are so severe my whole leg jerks. I have also had a couple with my head and neck where it looks like I am quickly shaking my head yes.

Could the be related to TOS? Has anyone had this symptom?

Doctors don't take movement disorders seriously. I saw a movement disorder specialist on 3/31/17. She searched through my records and had her diagnosis already made out before she even saw me for the first time. I predicted faster than her though. I told my friends she would probably chew me up and spit me out in little pieces. I felt like she was baiting me, hoping to see if I would lose my cool. I asked her, "Can't you just give me some Botox injections somewhere in my upper back, to stop the shrugging. "No!" Now I wonder why I even was sent there, because the service was lousy. They also called to remind me to be there by 10 AM, to check in. WTH? The receptionist said to come back 30 minutes before the appointment.

Hi,

Did you ever find out if this is related? I am also having symptoms in the leg. Joint pain, spasms and pins and needles. The clinician dealing with me says that he has only ever heard anecdotally that TOS can affect the legs, and it is not in the official literature.

If hips , shoulders, knees are uneven that can be a factor for joint pains and somewhat connected to TOS for some.., also hyper-mobility can be a factor..